I have been in contact with a family who, through friend’s of family and family of friends, got my name. Their son, Preston is having the same pectus repair surgery today that Jay had ten months ago. My heart and prayers goes out to them. I know, and remember all to well what they are going through and am so happy that we are able to use our experience to help them. Thinking about Preston and about our own experience reminded me that I need to get an update on the blog because Jay is doing amazing! He is a new kid.
I took these photos commemorating his six months, post surgery when the doctor gave him the “all clear” to resume normal activity. Jay was chomping at the bit! He feels so good and is so proud of his bar, we thought it would be cool to get some shots of him with his x-ray.
Besides Jay’s concave chest & the MRI that measure it “severe,” the main clue that there was a problem, was his inability to sustain any length of endurance exercises. He simply could not do it. Last year he ran his first 5K fun run, the Beat Coach Pete. I have a lot of photos of nature on that run because we spent a lot of time walking. At one point Jay wanted to sit down. I wouldn’t let him. I didn’t get why he couldn’t do it and I was frustrated, thinking he just wasn’t pushing himself. I had no idea that he was cardiovascularly compromised. It took an hour to complete the 3 miles. That, plus the fact his mile long run times in P.E. got slower year by year instead of faster, were the indicators he really did need this surgery. It would only get worse. We are now ten months post surgery. Just last month we made our second attempt to beat Coach Pete.
Although, we didn’t beat Pete, we finished in less than 35 minutes! He cut his race time down by half! I decided before the run I would just let him choose the pace…I would keep my mouth shut and just be there to support. He ran nearly the entire distance, stopping to walk briefly only once or twice and he finished strong!
Nick & Luke were there to cheer him in at the finish! Strong run Jay! I am so very proud of you.
I had to leave early for my marathon family photo day but was so happy and honored to have been there and run the race with him both years. To witness how much he has improved and how strong he is in both mind and body to conquer a really tough surgery and keep on running. I cried tears of joy all the way home. Next year, we will definitely beat Coach Pete!